Comments on: NHS continuing care funding for the elderly http://www.careathome.org/forum/nhs-continuing-care-funding-for-the-elderly/ A blog for discussions and news articles on elderly home care Thu, 29 Jul 2010 17:47:02 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: Helen http://www.careathome.org/forum/nhs-continuing-care-funding-for-the-elderly/comment-page-1/#comment-944 Helen Thu, 29 Jul 2010 17:47:02 +0000 http://www.careathome.org/forum/?p=78#comment-944 Can I charge my mother weekly for being her sole carer, thereby reducing her savings to the amount allowed in order to avoid my local authority taking her savings should I be unable, any longer to care for her? I have been sole carer (her needs have been assessed as requiring nursing care (but apparently not the type the N.H.S. pay for) for nine months without a break and feel abandoned and ignored by the N.H.S., I come up against a brick wall whenever I ask for respite and am told to ask the local authority social services. My social services are happy to provide a weeks respite but only for £500 plus per week and I don't want my mother to have to pay this. I am told of other people in similar situations to me having a week every eight weeks where their relative is taken into respite free of charge by the N.H.S., I am after all saving them thousands of pounds by providing my services free of charge. My mother has vascular dementia, is doubly incontinent, on a special mattress in a hospital bed here at her apartment. She has C.O.P.D., heart problems, osteoporosis and is only six stone with major constipation issues that require regular intervention by a district nurse. Anyone in a similar situation? Can anyone help me? Can I charge my mother weekly for being her sole carer, thereby reducing her savings to the amount allowed in order to avoid my local authority taking her savings should I be unable, any longer to care for her?
I have been sole carer (her needs have been assessed as requiring nursing care (but apparently not the type the N.H.S. pay for) for nine months without a break and feel abandoned and ignored by the N.H.S., I come up against a brick wall whenever I ask for respite and am told to ask the local authority social services. My social services are happy to provide a weeks respite but only for £500 plus per week and I don’t want my mother to have to pay this. I am told of other people in similar situations to me having a week every eight weeks where their relative is taken into respite free of charge by the N.H.S., I am after all saving them thousands of pounds by providing my services free of charge. My mother has vascular dementia, is doubly incontinent, on a special mattress in a hospital bed here at her apartment. She has C.O.P.D., heart problems, osteoporosis and is only six stone with major constipation issues that require regular intervention by a district nurse.
Anyone in a similar situation? Can anyone help me?

]]> By: Denise http://www.careathome.org/forum/nhs-continuing-care-funding-for-the-elderly/comment-page-1/#comment-942 Denise Fri, 09 Jul 2010 21:43:08 +0000 http://www.careathome.org/forum/?p=78#comment-942 My uncle had recently died which means that my aunt who suffers from alzheimer's has had to be moved into a nursing home. The social worker has straight away said that she has to sell her home. A few months ago she was kept in hospital for weeks because the car that she was travelling in was involved in an accident, even though she was unhurt she they kept her in because they felt that my uncle could not cope with her and because of her mental and physical problems. Would she have been assessed for continuing care before she was discharged. if so how do I see the assessment that the hospital done . When my uncle went into the hospice before he died, my aunt was sent to a nursing home by social services because she needs nursing care. My uncle had recently died which means that my aunt who suffers from alzheimer’s has had to be moved into a nursing home. The social worker has straight away said that she has to sell her home. A few months ago she was kept in hospital for weeks because the car that she was travelling in was involved in an accident, even though she was unhurt she they kept her in because they felt that my uncle could not cope with her and because of her mental and physical problems. Would she have been assessed for continuing care before she was discharged. if so how do I see the assessment that the hospital done . When my uncle went into the hospice before he died, my aunt was sent to a nursing home by social services because she needs nursing care.

]]> By: winney http://www.careathome.org/forum/nhs-continuing-care-funding-for-the-elderly/comment-page-1/#comment-937 winney Wed, 09 Jun 2010 21:22:04 +0000 http://www.careathome.org/forum/?p=78#comment-937 My Mother has been granted continual care, does this mean her state pension will go towards paying for the care home. My Mother has been granted continual care, does this mean her state pension will go towards paying for the care home.

]]> By: admin http://www.careathome.org/forum/nhs-continuing-care-funding-for-the-elderly/comment-page-1/#comment-935 admin Wed, 07 Apr 2010 09:21:49 +0000 http://www.careathome.org/forum/?p=78#comment-935 I would suggest arranging full assessment regarding the continuing care (which may have already been done) - this is given only in very extreme cases, or where the health situation is unstable, so it may not be granted in this case, but it is definately worth asking for an initial assessment and then re-assessment if his needs change. If continuing care is granted then NHS pays for all costs (attendance allowance would then cease and State Pension would go towards these costs, with the exception of personal expenses allowance - new rate of £22.30 per week) I assume that he is widowed with no-one currently living in his home - in which case this would be included as an asset and therefore as assets will be in excess of £23250, he will be due to pay for his own care, assuming continuing care is not granted. He should get higher rate Attendance Allowance (the sum you have quoted is lower rate) so re-apply to DWP (Department of Work and Pensions). New rate for new tax year is £71.40 per week higher rate and £47.80 per week lower rate. If nursing care is required - and is sounds like it from what you have said, then there is a contribution towards nursing care from NHS - new rate is £108.70 per week. I would suggest arranging full assessment regarding the continuing care (which may have already been done) – this is given only in very extreme cases, or where the health situation is unstable, so it may not be granted in this case, but it is definately worth asking for an initial assessment and then re-assessment if his needs change. If continuing care is granted then NHS pays for all costs (attendance allowance would then cease and State Pension would go towards these costs, with the exception of personal expenses allowance – new rate of £22.30 per week)

I assume that he is widowed with no-one currently living in his home – in which case this would be included as an asset and therefore as assets will be in excess of £23250, he will be due to pay for his own care, assuming continuing care is not granted.
He should get higher rate Attendance Allowance (the sum you have quoted is lower rate) so re-apply to DWP (Department of Work and Pensions). New rate for new tax year is £71.40 per week higher rate and £47.80 per week lower rate.

If nursing care is required – and is sounds like it from what you have said, then there is a contribution towards nursing care from NHS – new rate is £108.70 per week.

]]> By: Susan http://www.careathome.org/forum/nhs-continuing-care-funding-for-the-elderly/comment-page-1/#comment-933 Susan Mon, 22 Mar 2010 10:51:47 +0000 http://www.careathome.org/forum/?p=78#comment-933 My father has vascular dementia, is double incontinent and cannot walk due to a fall in the hospital. He requires 2 to 3 carers to assist him for all personal care. He is partially deaf and his cognitive respones are worsening, difficult to understand his speech at times. He has been hospitalited for over a year and they now wish to move him to a nursing home. Should he not be entitled to Continuing Care? If not, He has around £5000 in savings and owns his own home. He s in receipt of £47.10 attendance allowance and his Government pension and a very small private pension. Is there any further assistance he would be entitled to? My father has vascular dementia, is double incontinent and cannot walk due to a fall in the hospital. He requires 2 to 3 carers to assist him for all personal care. He is partially deaf and his cognitive respones are worsening, difficult to understand his speech at times. He has been hospitalited for over a year and they now wish to move him to a nursing home. Should he not be entitled to Continuing Care? If not, He has around £5000 in savings and owns his own home. He s in receipt of £47.10 attendance allowance and his Government pension and a very small private pension. Is there any further assistance he would be entitled to?

]]> By: admin http://www.careathome.org/forum/nhs-continuing-care-funding-for-the-elderly/comment-page-1/#comment-906 admin Mon, 25 Jan 2010 20:17:33 +0000 http://www.careathome.org/forum/?p=78#comment-906 I have moved this discussion to our forum, as this seems a better medium for a discussion, not realising that this would be so popular as a post – this is here – http://www.careathome.org/homecareforum/showthread.php?tid=10 I have moved this discussion to our forum, as this seems a better medium for a discussion, not realising that this would be so popular as a post – this is here – http://www.careathome.org/homecareforum/showthread.php?tid=10

]]> By: Helen http://www.careathome.org/forum/nhs-continuing-care-funding-for-the-elderly/comment-page-1/#comment-903 Helen Sat, 23 Jan 2010 22:18:01 +0000 http://www.careathome.org/forum/?p=78#comment-903 My mother was discharged from the E.M.I. ward of a local hospital two and a half months ago. after a three month stay following a stroke. She has vascular dementia, is doubly incontinent, cannot walk and only stands to be washed when two carers assist. The Senior Nurse Manager on the ward told me that she would need 24hr nursing care, however I have moved to her home as her 24hr carer with homecare coming in twice daily to toilet, wash, dress her etc. Mum is being charged weekly for this, having been assessed by the local authority. I get no respite unless I am prepared to pay what I consider to be far too much - I am a pensioner on pension credit and have a still semi-dependent young son . My mothers condition is deteriorating but the hospital has said that there is nothing more that can be done and that she is on the appropriate medication for her condition. My mothers behaviour can be unpredictable, I find her in various states of undress, her incontinence creates massive problems when she removes her pads and needs to be watched virtually all the time. Her sleep patterns vary so that sometimes she is awake in the middle of the night and I find it difficult to balance her laxatives in order balance her constipation problem, with various doctors and district nurses having differing opinions and suggestions. Is my mother eligible for N.H.S. funded continuing healthcare, and if so how does this apply when the patient is at home? Is it worth going to a specialist solicitor for advice and do you think they would take on my case? If Mum is eligible for N.H.S. funded continuing care would I be able to have a live-in nurse with me attending on the persons days off? I really hope you can help me with answers to these questions....Thankyou. My mother was discharged from the E.M.I. ward of a local hospital two and a half months ago. after a three month stay following a stroke. She has vascular dementia, is doubly incontinent, cannot walk and only stands to be washed when two carers assist. The Senior Nurse Manager on the ward told me that she would need 24hr nursing care, however I have moved to her home as her 24hr carer with homecare coming in twice daily to toilet, wash, dress her etc. Mum is being charged weekly for this, having been assessed by the local authority. I get no respite unless I am prepared to pay what I consider to be far too much – I am a pensioner on pension credit and have a still semi-dependent young son . My mothers condition is deteriorating but the hospital has said that there is nothing more that can be done and that she is on the appropriate medication for her condition. My mothers behaviour can be unpredictable, I find her in various states of undress, her incontinence creates massive problems when she removes her pads and needs to be watched virtually all the time. Her sleep patterns vary so that sometimes she is awake in the middle of the night and I find it difficult to balance her laxatives in order balance her constipation problem, with various doctors and district nurses having differing opinions and suggestions. Is my mother eligible for N.H.S. funded continuing healthcare, and if so how does this apply when the patient is at home?
Is it worth going to a specialist solicitor for advice and do you think they would take on my case? If Mum is eligible for N.H.S. funded continuing care would I be able to have a live-in nurse with me attending on the persons days off?
I really hope you can help me with answers to these questions….Thankyou.

]]> By: admin http://www.careathome.org/forum/nhs-continuing-care-funding-for-the-elderly/comment-page-1/#comment-884 admin Sun, 10 Jan 2010 15:24:43 +0000 http://www.careathome.org/forum/?p=78#comment-884 I have moved this discussion to our forum, as this seems a better medium for a discussion, not realising that this would be so popular as a post - this is here - http://www.careathome.org/homecareforum/showthread.php?tid=10 I have moved this discussion to our forum, as this seems a better medium for a discussion, not realising that this would be so popular as a post – this is here – http://www.careathome.org/homecareforum/showthread.php?tid=10

]]> By: Jamie Whitehouse http://www.careathome.org/forum/nhs-continuing-care-funding-for-the-elderly/comment-page-1/#comment-882 Jamie Whitehouse Wed, 30 Dec 2009 19:26:33 +0000 http://www.careathome.org/forum/?p=78#comment-882 Hi all, Since the completion Johnson, Roe and Eyton-Jones cases in September 2009, it seems that the existing websites that provide support on challenging PCT's on NHS continuing care funding have ceased to be maintained. I have started a new support page at http://www.serveronecare.com and I would ask everyone for their support. I intend to publish the assessment forms for each authority in england, once I have received copies so that everyone can see the huge differences in how the national policies are being applied. I also have started a case database of all the cases that are taken to the ombudsman for determination, or are appealed. I have added a link to this website to my homepage, and I would be very grateful if you would be so kind to return the favour to help spread the word. Many thanks Hi all,

Since the completion Johnson, Roe and Eyton-Jones cases in September 2009, it seems that the existing websites that provide support on challenging PCT’s on NHS continuing care funding have ceased to be maintained. I have started a new support page at http://www.serveronecare.com and I would ask everyone for their support.

I intend to publish the assessment forms for each authority in england, once I have received copies so that everyone can see the huge differences in how the national policies are being applied. I also have started a case database of all the cases that are taken to the ombudsman for determination, or are appealed.

I have added a link to this website to my homepage, and I would be very grateful if you would be so kind to return the favour to help spread the word.

Many thanks

]]> By: admin http://www.careathome.org/forum/nhs-continuing-care-funding-for-the-elderly/comment-page-1/#comment-879 admin Wed, 16 Dec 2009 11:23:53 +0000 http://www.careathome.org/forum/?p=78#comment-879 Hi Jenny - Your Grandmother should receive Attendance Allowance (apply to Department of Work and Pensions DWP) lower rate (£47.10 per week) for care day or night and higher rate (£70.55) for care day and night. This is non means tested Nursing care has to be provided by (or in an enviroment with) a registered nurse and so it is unlikely that the Nursing Care Contribution (£106.30 per week) would be payable in her own home, however you could ask your local PCT She should also be assessed by the local authority/social services to check out the level of care needed and there may be a grant for work around the house, if required ie grab bars, stair lift etc. Hi Jenny – Your Grandmother should receive Attendance Allowance (apply to Department of Work and Pensions DWP) lower rate (£47.10 per week) for care day or night and higher rate (£70.55) for care day and night. This is non means tested Nursing care has to be provided by (or in an enviroment with) a registered nurse and so it is unlikely that the Nursing Care Contribution (£106.30 per week) would be payable in her own home, however you could ask your local PCT She should also be assessed by the local authority/social services to check out the level of care needed and there may be a grant for work around the house, if required ie grab bars, stair lift etc.

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